Recently, I have been checking out the big infertility/fertility message board communities. I never thought that much about fertility message boards until recently. After all, I was familiar with them - I ran them when I was the Executive Director at The American Fertility Association.  They seemed pretty straight forward to me - patients got to post questions to reproductive endocrinologists and other fertility experts - and they answered them! People who were experiencing reproductive difficulties could connect with each other - and find support and comfort in each other. There was nothing complicated about that…..but then I found out that there was an under belly to many of the fertility message boards that floated around the country….and the under belly was not transparent to the unsuspecting user.

People are seeding  some of the message boards out there. What does that mean? Well, to speak frankly, (and when don’t I ever not speak frankly?)  there are people who work in the infertility community who spend a lot of time reading these message boards - pretend to be patients - and direct patients to their own IVF Centers! When I found this out by listening to some of the very people that were doing this - I wanted to go shower. They think that they are clever marketers and some even think that they are helping patients by  ”listening in” to what the patients are talking about - and then stepping in with referrals and loaded advice. To me, it is cyber ambulance chasing.

I know - this is hard to believe - but I promise you it is true. So how do you know if you are talking to another patient or an impostor? I don’t have an answer to that.

Fertility message boards  can be a wonderful source of information for fertility patients.  East Coast Fertility where I work as the Director of Patient Education just launched two new message boards on their website. I think it’s a great resource for patients to ask questions directly from a well known doctor and oh ME! And I want to be clear that I am not knocking message boards - they serve a great purpose. I am a supporter!

And, perhaps on many message boards that are run by patient groups and fertility centers who put their name on their message boards - it is can seem much clearer on who you are talking to. These message boards serve a great purpose in the fertility cyber community not only offering information, but also a place to find support and connection with other patients. But they may not be the best place to get a doctor referral or the skinny on a particular doctor or center. Because you might actually be talking to “the competition” with an agenda in disguise!

Blech.

It is a huge embarrassment to the fertility community that there are fertility professionals who are hyacking some of these boards to their own ends - to drive  traffic to their own practices and are literally preying on patients who think that they are in a safe message board community run by patients for patients.

You need to know the facts of what is happening on some of these message boards - and if you are hearing a great deal of center bashing - and directed referrals to “the best doctor in the universe” - buyer beware.

Posted under Fertility, Infertility